Just a quick update on Baby Shea - they now have a website which is www.loveforshea.com and have had to bump up their fundraising goal to $50,000 through the go fund me site www.gofundme.com/Babyshea and are currently just over $32,000! Good job people!
They have had a set back though - Shea has been diagnosis has been refined
to Herlitz -Junctional Epidermolysis Bullosa. This news has devastated
Christy and Bryn and completely changes the level of care that Shea
requires. We will be lucky to have Shea in our lives for the next 3
years. In order to manage his daily care and insure he is as loved and
comfortable as possible Bryn or Christy will now need to stay home with
Shea full time.
This is hard to hear but I know that they are so grateful for the support they have received already.
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