I can't remember if I updated that little baby Shea lost his battle with EB and died in July. How terrible and unfair and sad.
His parents held a funeral for him and put together this slide show. Warning it is very sad and took me 3 tries to get through the whole thing.
http://youtu.be/WplTWadKyq0
Lots of love for Christy and Brynn - my heart goes out to you
